Finance Score: 2

Governance Score: -1

Support Score: 8

Strong growth: +2
No PartB

Only 4 Trustees: -1

Grant maker support: +8

Overall GiG Score: 9

PATHFINDERS NEUROMUSCULAR ALLIANCE

Our main activity is to provide advice and information to adults living with Muscular Dystrophy and related neuromuscular conditions via information events, guides and resources, and peer support activity. We also raise awareness of issues facing adults with neuromuscular conditions and provide advice on health research committees and steering groups

Analysis by Giving is Great

Positives:

There has been strong growth in spending over the last 5 years
There have been no material income shortfalls in recent years
A significant proportion of recent income was derived from major grant makers and there are significant future grants due to be received

Regulatory & Governance issues to consider:

One or more trustees receive payments or benefits from the charity for providing services to the charity
There are only 4 trustees

Financial issues to consider:

A PartB annual return has not been required and so detailed financial information is not available from the online data

Established: 10 years

https://www.pathfindersalliance.org.uk

info@pathfindersalliance.org.uk

07856207351

Charity Commission for England and Wales

Tweets

Financial Data ?

Income & Spending ?

Sources of Income ?

Y/E	Income £k	Spending £k	Surplus/ Deficit	Fundraising Cost £k	Total Funds £k	Unrestricted Funds £k	Mths Rsrvs	Staff	Volun- teers
05/04/23	£180	£172	£8	n/a	n/a	n/a	n/a	n/a	12
05/04/22	£244	£135	£109	n/a	n/a	n/a	n/a	n/a	10
05/04/21	£87	£57	£29	n/a	n/a	n/a	n/a	n/a	29
05/04/20	£29	£45	£-16	n/a	n/a	n/a	n/a	n/a	10
05/04/19	£50	£30	£21	n/a	n/a	n/a	n/a	n/a	21
05/04/18	£39	£30	£10	£0	£0	£0	n/a	0	0
05/04/17	£18	£13	£5	£0	£0	£0	n/a	0	0
05/04/16	£18	£0	£18	£0	£0	£0	NAN	0	0
05/04/15	£2	£0	£2	£0	£0	£0	NAN	0	0

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Highest pay bracket: less than £60,000

Listed activities

Disability
Education/Training
General Charitable Purposes

How it operates

Makes Grants to Individuals
Provides advocacy/advice/information
Provides services

Where it operates

Scotland, Throughout England And Wales,

Who it helps

Children/Young People
People With Disabilities

Who works here?

Unknown number of employees
12 volunteers

Who's supporting them? ?

Donations from Grant Makers ?

We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

Major supporters in last 5 years

National Lottery Community Fund	£325,518
Tudor Trust	£92,000
The Foyle Foundation	£3,000

Specific Donations

Amount	When Months	To be used for
Tudor Trust - Grant to Pathfinders Neuromuscular Alliance
£90,000	21/02/2022 36	over three years as continuation funding on an unrestricted basis, for a charity run by and for adults with neuromuscular conditions
National Lottery Community Fund - Disability Rights Advocacy Programme
£300,829	01/09/2021 48	The grant will be used by the group over four years to deliver their Disability Rights Advocacy programme training 40 young people with muscle-weakening conditions to become peer advocates. Through ....more The grant will be used by the group over four years to deliver their Disability Rights Advocacy programme training 40 young people with muscle-weakening conditions to become peer advocates. Through the programme they will develop knowledge skills and confidence in health literacy disability rights social advocacy and leadership to enable them to go on to deliver workshops to other young people providing training in disability rights and campaign and self-advocacy skills.
Tudor Trust - Grant to Pathfinders Neuromuscular Alliance
£2,000	18/02/2021	as an additional grant to support staff, volunteer and trustee wellbeing, to assist the organisation deliver its charitable purpose more effectively
National Lottery Community Fund - DMD Pathfinders Covid19 Support
£24,689	18/06/2020 6	This organisation will use the funding to support people with Duchenne muscular dystrophy. A new part-time staff member will be recruited to carry out weekly welfare checks by telephone. Online ....more This organisation will use the funding to support people with Duchenne muscular dystrophy. A new part-time staff member will be recruited to carry out weekly welfare checks by telephone. Online events will be expanded to ensure that everyone who is experiencing social isolation is able to connect and participate in activities with others. They will also work with partners to plan for resuming essential social and health care as lockdown restrictions are eased.
The Foyle Foundation - Small Grants
£3,000	20/09/2019	for core costs in 2019/20
Tudor Trust - Grant to DMD Pathfinders
£15,000	04/03/2019 36	as an additional grant over three years towards the extra costs of a job share arrangement involving two men with Duchenne Muscular Dystrophy within a new part-time development worker role
Tudor Trust - Grant to DMD Pathfinders
£75,000	06/08/2018 36	over three years towards the salary and associated costs of a part-time development worker to engage with and support adults with Duchenne Muscular Dystrophy around the UK
National Lottery Community Fund - Mentoring Plus
£10,000	19/08/2015 12	The group will use the funding to coach and mentor their volunteers for their user led organisation to strengthen skills to provide advice and support to those living with Duchenne Muscular ....more The group will use the funding to coach and mentor their volunteers for their user led organisation to strengthen skills to provide advice and support to those living with Duchenne Muscular Dystrophy. This will increase the organisations capacity to better serve its beneficiaries.

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Data sourced from Donors via 360 Giving

How is it governed?

Trustees (4)

Current Trustees appointed

SANJEEV MANN Appointed: 2022

KAREN ELIZABETH HOE Appointed: 2023

SARAH ROSE (Chair) Appointed: 2020

VICKY MOZLEY Appointed: 2021

Legal constitution

Charity registered in England & Wales on 21/02/2014, number: 1155884

Gift Aid

Registered with HMRC for Gift Aid

Policies in force

Bullying and harassment policy and procedures
Campaigns and political activity policy and procedures
Complaints policy and procedures
Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Investing charity funds policy and procedures
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Serious incident reporting policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

Filing Record

9 returns made; all on time

Main office

103 London Road
HAILSHAM
East Sussex
BN27 3AH

Objectives

1.The promotion of social inclusion of people with neuromuscular conditions who are socially excluded from society, or parts of society as a result of having Muscular Dystrophy and related neuromuscular conditions by 1. Providing a network of groups that encourage and enables them to participate more effectively with the wider community,2. Increasing or co-ordinating opportunities for them to engage with organisations and service providers to enable those providers to adapt services to better meet their needs,3. Raising public awareness of the issues affecting them in all areas relating to having a neuromuscular condition,4. Providing support to those between the age of 18 and 30 who are socially excluded to establish and grow a business or enterprise to relieve their needs and assist them to integrate into society. 2. To promote and protect the physical and mental health of people with Muscular Dystrophy and related neuromuscular conditions in the United Kingdom as the trustees shall determine.

Data Sources