Finance Score: 1
Governance Score: 0
Support Score: 10
  • Liabilities <10%: +3
  • Pension deficit: -3
  • Multiple Deficits: -2
  • Fundraising costs low: +3
    • Grant maker support: +10
    Overall GiG Score: 11 ?

    THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST 

    Established in 1897 the National Centre for Young People with Epilepsy is a national charity that is the UK's major provider of services to children and young people with epilepsy and associated learning, emotional and behavioural difficulties. The Trading Name, Young Epilepsy, launched in Nov 2011, reflects our ambition to reach as many of the 112,700 young people with epilepsy, as possible.
    Analysis by Giving is Great

    Positives:

    • This charity has a robust balance sheet
    • Fundraising costs are unusually low relative to funds raised
    • A significant proportion of recent income was derived from major grant makers including the Government

    Regulatory & Governance issues to consider:

    • This charity uses a corporate trustee

    Financial issues to consider:

    • There is a pension deficit of £6,509,000
    • On several occasions in recent years income has been less than spending
    Established: 61 years

    www.youngepilepsy.org.uk

    rnorman@youngepilepsy.org.uk

    01342 832243

    Charity Commission for England and WalesFacebookInstagramX
    UN SDGs
    ?

    Financial Data ?

    Income & Spending ?
    Sources of Income ?
    Y/E Income
    £k
    Spending
    £k
    Surplus/
    Deficit
    Fundraising
    Cost £k
    Total
    Funds £k
    Unrestricted
    Funds £k
    Mths
    Rsrvs
    Staff Volun-
    teers
    31/07/22£22,817£23,371£-554£393£18,623£18,0279.35780
    31/07/21£24,522£24,794£-272£401£17,223£16,6938.16384
    31/07/20£25,310£25,803£-493£431£17,062£16,5877.76375
    31/07/19£23,251£23,515£-264£433£19,051£18,3749.46309
    31/07/18£25,232£23,641£1,591£541£19,666£18,8719.65097
    31/07/17£25,510£28,931£-3,421£732£17,182£16,3486.86300
    31/07/16£27,692£26,647£1,045£720£20,278£13,1265.97480
    31/07/15£29,199£26,236£2,963£882£20,666£14,7446.76680
    31/07/14£27,501£26,530£971£899£19,428£15,1456.96750
    31/07/13£27,372£26,187£1,185£783£19,026£12,0355.56590
    31/07/12£24,160£24,942£-782£595£17,673£11,5255.56420
    31/07/11£24,268£23,574£694£511£20,308£14,9207.66600
    31/07/10£24,779£22,912£1,867£329£19,652£14,2797.56350
    31/07/09£27,015£22,751£4,264£321£17,561£12,3716.56620
    31/07/08£22,372£19,915£2,457£597£14,226£12,4277.55920
    31/07/07£19,118£16,931£2,187£475£12,938£11,4438.15570
    31/07/06£17,069£16,856£213£0£0£0n/a00
    31/07/05£16,670£16,037£633£0£0£0n/a00
    31/07/04£15,791£14,917£874£0£0£0n/a00

    Financial Ratios
    Fundraising Costs/Relevant Income: 1.8%
    Fundraising Costs/Total Spending: 1.7%
    Senior Staff Costs/Total Spending: 8%
    Highest pay band: £130,000-£140,000
    Liabilities/Assets: 7%
    Liabilities/Income: 8%
    Unrestricted Funds/Total Funds: 97%
    Reserves/Spending: 9.3 months
    Net Current Assets/Spending: 2 months
    Quick Ratio: 1.4
    Asset Split ?
    Listed activities
    • Disability
    • Education/Training
    • The Advancement Of Health Or Saving Of Lives
    How it operates
    • Provides advocacy/advice/information
    • Provides services
    • Sponsors or undertakes research
    Where it operates
    • Northern Ireland, Scotland, Throughout England And Wales,
    Who it helps
    • Children/Young People
    • People With Disabilities
    Who works here?
    • 578 employees

    Who's supporting them? ?

    Donations from Grant Makers ?

    We have details on the following significant donations. Multi-year donations are allocated to the years for which they are earmarked.

    Major supporters in last 5 years
    Wolfson Foundation£497,000
    National Lottery Community Fund£375,000
    Garfield Weston Foundation£150,000
    The Foyle Foundation£50,000
    Specific Donations
    Amount When
    Months
    To be used for
    Community Foundation for Surrey - The Outdoor and Woodland Learning Programme
    £5,000 31/01/2024
    9.6129032258065
    Funding for a specialist school to provide outdoor learning for pupils.
    The Aim Foundation - Grant to Young Epilepsy
    £1,000 06/07/2023
    Family Fund Donation
    Co-Operative Group - Grant to Young Epilepsy
    £1,569 22/10/2022
    We aim to create a sensory garden and courtyard to reduce anxiety and provide a homely ambiance for patients and their families.
    National Lottery Community Fund - Support and Inclusion for Children and Young People with Epilepsy
    £375,000 01/08/2022
    The funding will support the National Centre for Young People with Epilepsy Charitable Trust working under the name Young Epilepsy (YE) to tackle deep-rooted challenges faced by children with ....more
    Garfield Weston Foundation - Major Grants award
    £150,000 09/07/2021
    DIGITAL SOLUTION FOR CHILDREN AND YOUNG PEOPLE WITH EPILEPSY: PERSONALISED CARE TO SUPPORT EPILEPSY MANAGEMENT
    The Foyle Foundation - Learning (MGS)
    £50,000 08/07/2021
    towards the Inclusion in Education for Children and Young People with Epilepsy project (awarded grant in response to coronavirus)
    Wolfson Foundation - Grant to Young Epilepsy
    £497,000 09/12/2020
    Purchase of OP-MEG sensors and related IT equipment within Health Diagnostic Suite
    Community Foundation for Surrey - COVID19 - People with Disabilities
    £3,500 03/07/2020
    Funding for 10 laptops to enable staff to work with young people and their families remotely during the COVID-19 pandemic
    Community Foundation for Surrey - COVID19 - People with Disabilities
    £3,500 11/06/2020
    Funding for 10 laptops to enable staff to work with young people and their families remotely during the COVID-19 pandemic
    London Marathon Charitable Trust - Outdoor and Woodland Learning Project - Young People with Epilepsy
    £16,500 10/06/2020
    Towards the renovation of an existing woodland shelter used as an outdoor learning classroom and path improvements enabling the space to be wheelchair accessible. The project at St Piers School and ....more
    Community Foundation for Surrey - The Woodland Project
    £5,000 14/01/2020
    18
    Funding to build a log cabin and yurt in a woodland area that will enhance the learning of young people with epilepsy.
    Co-Operative Group - Grant to Young Epilepsy Lingfield
    £2,770 15/11/2019
    We want to take children within our community on days out and extend our support group for families and community education.
    Co-Operative Group - Grant to Young Epilepsy
    £3,609 15/11/2019
    We want to deliver vital resources to support local paediatric epilepsy support nurses.
    Co-Operative Group - Grant to The National Centre For Young People With Epilepsy Charitable Trust
    £3,923 19/11/2018
    We need to purchase resources for our awareness event stand including a table, gazebo, tear drop flag and printed signs.
    Community Foundation for Surrey - Wheelchair accessible playground
    £4,500 01/10/2018
    9
    Funding for equipment for a wheelchair accessible playground for children with Epilepsy.
    Co-Operative Group - Grant to Young Epilepsy Horsham
    £3,211 29/11/2017
    We want to provide teacher training for local schools about epilepsy and how to provide the assistance that a child with epilepsy will need.
    BBC Children in Need - Grant to National Centre For Young People With Epilepsy
    £104,010 11/10/2016
    36
    The project will develop support services in London for young people with epilepsy in transition from childhood to adulthood. This service will improve self-management of their condition, mental ....more
    Sport England - Inclusive Outdoor Gym for Community and Disabled Students
    £63,042 20/11/2015
    27
    Funding under Sport England's Inspired Facilities funding programme for a Capital project titled 'Inclusive Outdoor Gym for Community and Disabled Students'. This project is a Exercise & Fitness ....more
    National Lottery Community Fund - Connect
    £436,167 08/04/2015
    48
    This will support young people with epilepsy. This project will be delivered across three deprived regions: Blackpool, Clacton-on-Sea and Thanet. It will provide a network of support for young who ....more
    True Colours Trust - Towards Phase II research and an infancy handbook
    £62,324 16/07/2014
    Towards Phase II research and an infancy handbook
    Henry Smith Charity - Grant to Young Epilepsy
    £150,000 12/09/2013
    towards the building costs of an Education Resource Centre for children with severe epilepsy and other neurological disabilities across the UK
    National Lottery Community Fund - NCYPE Pirate Playground
    £10,000 05/05/2011
    12
    This is a project by an incorporated charity in East Sussex. The group will use the funding to make improvements to the playground including an active play area and a sensory play area.
    National Lottery Community Fund - Epilepsy Education for schools
    £234,645 15/07/2010
    36
    This project will inform and educate teachers and all pupils across London to understand the challenges associated with epilepsy and to not be afraid to include the pupils with the disorder in ....more
    Esmee Fairbairn - Grant to Young Epilepsy
    £120,000 26/03/2009
    36
    Towards Core costs Towards the salary of an educational psychologist to improve educational support for young people with epilepsy.
    Show more rows

    Data sourced from Donors via 360 Giving

    How is it governed?

    Trustees (1)

    • THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY
    Legal constitution
    • Charity registered in England & Wales on 24/07/1963, number: 311877
    Gift Aid
    • Registered with HMRC for Gift Aid
    Other Regulators
    • Care Quality Commission
    • Ofsted (Office For Standards In Education)
    Policies in force
    • Complaints handling
    • Conflicting interests
    • Investment
    • Paying staff
    • Risk management
    • Safeguarding vulnerable beneficiaries
    Filing Record
    19 returns made; all on time
    Main office

    Young Epilepsy
    St. Piers Lane
    LINGFIELD
    RH7 6PW

    Objectives

    (1) THE ADVANCEMENT OF PUBLIC EDUCATION BY THE PROVISION OF A SPECIAL SCHOOL WITHIN THE MEANING OF THE EDUCATION ACTS AND A COLLEGE FOR FURTHER EDUCATION. (2) THE RELIEF OF CHILDREN AND YOUNG PERSONS SUFFERING FROM DISABILITIES OF MIND OR BODY WITH PARTICULAR REGARD TO CHILDREN AND YOUNG PERSONS IN NEED OF SPECIAL EDUCATIONAL TREATMENT BY REASON OF DISORDERS OF THE NERVOUS SYSTEM AND ESPECIALLY EPILEPSY, INCLUDING EDUCATION, CARE, RESEARCH, ASSESSMENT AND REHABILITATION.

    Defined Area of Benefit:

    NOT DEFINED. IN PRACTICE LINGFIELD.

    Data Sources

    Charity Commission for England and Wales
    360 Giving
    CharityBase
    Authorised officials of this charity can add information to this page (including a Donate Now button) for no cost

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